Sunday, May 23, 2010

I need to carry PECS!

So, since my last entry, we have had part one of a new Speech and Language Evaluation. I say part one because when Tri-West processed the eval, they only approved half of it! What? So, this coming Wednesday, I will be paying for the rest of the evaluation. Tri-West has denied our request for speech therapy. Go figure. I am hopeful that this new evaluation will provide us with another way to show Tri-West that they NEED to cover, at least partially, speech therapy for CAPD. Sometimes it feels like I'm the only one in the world that GETS IT when it comes to CAPD and the treatment that she needs. I know there are more people out there, hence the release of a new book called "The Sound of Hope"...HELP, throw me a preserver....someone.

We have also had our last IEP for this school year. Some of her goals were updated and I have to admit she is struggling more than a lot of people see. But that's okay. The summer provides me the uninterrupted opportunity to help maintain what she learned throughout the school year.

Today I was reminded, again, of what Emmie's abilities are. She has been sick for the last few weeks. At first, I figured it was her allergies..she has horrible allergies. I really think she is allergic to California. But after a few days of medications, no change. So, hmm..maybe a cold. A week and a half of cold meds and nothing. We took her to the Pediatrician on Friday who assured us it was a cold. The family hasn't been sleeping because Emmie wakes us up with her coughing and she's just miserable. Today, I took her to the ER. Her heart rate was high, pulse ox was low and guess what? She has bronchitis. Just a cold, huh? But, that's not the part that frustrates me..although I think if a Pediatrician can't recognize a child with obvious problems...well, where did she get her medical degree? Anyway, the nurses, tech, and doctor all speak to Emmie like they would anyone else. Emmie isn't hearing most of what they say and can't answer fully because she didn't process what they just said to her! I think when someone has a language disorder, it should somehow come up in their medical file! A little pop up of some sort when they log in to say "Language Disorder" so they know to speak slowly, rephrase, or even use pictures! I don't think that's too much to ask a medical facility. I guess I need to carry PECS everywhere. We left four hours later with two medications. She's sleeping right now and I should use this opportunity for a nap!

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