Monday, April 19, 2010


I spoke too soon yesterday, although we have some news, it still isn't good news. I heard from the Case Manager today. He said he spoke to the Pediatrician and they put in a referral for speech therapy for the Aptitude Habiliation Service program with the speech therapist I have requested. However, we also have a roadblock. The Aptitude Service is not listed under our insurance company. There are two speech therapist listed under our insurance company. Tri-West has a fifty mile radius, so if there is a speech therapist within that fifty miles..that is who we will see. There are two problems with this. First, out of the two offices listed only one has experience and resources to handle CAPD. Second, the Tri-West website lists these offices as "49.99" miles away. Nice try, Tri-West. They are actually OVER sixty miles away from the base! So, I certainly don't have my hopes up on getting this referral approved. The waiting game continues....

Sunday, April 18, 2010

No news is good news?

Emmie's binder of information has been turned over to the Pediatric Case Manager. I included information on CAPD, emails from a speech therapist who wants to work with Em, IEP, and all of her evaluations, tests, and results. Now we play the big fat waiting game. I am beyond frustrated with the waiting games. I have to prove my daughter needs assistance. I feel like I'm always fighting. And with each fight, I fight it alone. We have no one on our side. I have heard from the Case Manager once, to ask a few questions. Other than that, no news is good news, right?

On another note, I think we are going to have to go back to the intensive multi-sensory work with Emmie. She was making great progress, however, we are on that wonderful roller coaster and right now it's all up hill. She's struggling and we need to come up with a new plan, maybe hop on a different ride. Maybe this time I should wear a helmet.

Saturday, April 10, 2010

It's her birthday!

Emmalyn celebrated her 9th birthday today. For her birthday, she wanted clothes for Dexter, the quirky Koala. Of course she wanted other things, her list was like a novel, but number one was clothes for the poor naked Koala. As you can see, Dexter is now sporting a knit sweater and matching cap. He's a happy little fellow. Dexter is an unusual friend. He apparently loves to travel and often, during the day, goes on little trips around the house. Emmie will leave him on odd places for his "adventures." He has traveled in the closet, in my computer bag, on the stair railing, and under pillows. He's very worldly. For her birthday, she also wanted to go to lunch. She choose Hometown Buffet because she could pick whatever she wanted, plus they had ice cream! Off to lunch we went, complete with Dexter in her bag. She ate so much she said if we didn't leave at this very moment, "I am going to explode and you'll have to clean me off the walls." Yeah, she's weird :) She had chicken and jello, fries and pizza, ice cream and a cupcake. And, of course, Icee's! She drank nearly three of them! You only turn 9 once in your life after all.

I think, overall, she has had a nice birthday. She got things she wanted, including a trampoline, ball for her zhu zhu pet, a wizards blanket, purse and hat from Claires, and a new design sticker for her wall. And of course, she got to eat whatever she wants...which never happens when Mom's around!

And I know you are thinking..what in the world is she wearing? Well, if you know Emmie, then you know she wears whatever is comfortable. She doesn't much care about it matching. This is actually her third outfit of the day. She started with a lovely pink dress, complete with purple pj pants and little mermaid socks. Outfit two was cammo capris, a brown shirt, and zebra print socks (which she wore to lunch). Now, she is wearing a brown shirt, blue plaid pants, a polka dot jacket, the same zebra socks, and black shoes. She has her own style :)

So...Happy Birthday Em! I'm so glad we didn't have to clean you off the walls :)
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